Lifestyles & Trends - Community

New initiative celebrates unsung heroes of severe allergy awareness

Individuals at risk for anaphylaxis - a severe, life-threatening allergic reaction - know the importance of having people around them who can help with allergen avoidance, such as bringing allergy-friendly food options to the company party or helping to shield from bees on the playground. Now, there is a new way to say "thank you" to the teacher, relative or co-worker who has made a difference in the life of an individual at risk for anaphylaxis. Sanofi US has launched a Severe Allergy Awareness Facebook page where individuals have a unique opportunity to create online awards via the "Celebrate Someone" app to recognize an unsung hero of allergy awareness.

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Igniting the conversation about rare diseases

Each year, people across the world are invited to join together to raise awareness about rare diseases. Unlike more common conditions such as diabetes and breast cancer, many of these diseases, as well as the people affected by them, are not recognized by their own awareness initiatives throughout the year.

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Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond

Getting a diagnosis is just the first of many challenges patients with rare diseases - and their caregivers - face.

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Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma

In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the cancer has already spread. One particular cancer, multiple myeloma, often goes undiagnosed until the disease has spread to the bone.

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Rare diseases: Increasing awareness for better patient outcomes

Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is also living with the disease, and learning their options for disease management and treatment.

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